I have a child with a disability and NIH has made a scary proposal that could impact millions like her

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Does the National Institutes of Health (NIH) truly value the lives and well-being of the most vulnerable in society? Recent actions regarding the organization’s mission statement raise questions about NIH’s priorities, given the way in which our current culture devalues and undermines individuals with disabilities. 

Recently, Sens. Marco Rubio (R-FL) and Tammy Duckworth (D-IL) wrote the NIH about a mooted change to the institutes’ mission statement. The letter notes that NIH has proposed removing the words “lengthen life” from its stated goals. 

Last summer, NIH issued a request for information soliciting comment on a series of changes to its mission statement. In its public request, the NIH claimed that a diversity subgroup focused on individuals with disabilities recommended the change. 

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